Many of us read and enjoy the nationally
syndicated column written right here in San Antonio by Heloise. In the
Express-News on June 24, 2008 the US Department of Health and Human
Services (HHS) wrote Heloise to "set the record straight" about the
HIPAA medical confidentiality rules.
In May, "Jan" wrote Heloise to recount how
a hospital denied her access to information about her husband, who was
in the emergency room. The HHS representative (Mr. Wilkinson) asserted
the hospital was in the wrong because HIPAA "permits the hospital to
explain his condition to a spouse".
However, Mr. Wilkinson also stated that
HIPAA "does not require hospitals to disclose patient information in
these situations. So, if you are told by staff that HIPAA prevents them
from sharing relevant information, you may want to talk to a
supervisor."
Mr. Wilkinson’s comment that the hospital
is permitted to release the information is modified by his
statement that the hospital is not required to release the
information. He does not mention that the government has created a
monetary penalty that must be paid if the health care provider wrongly
releases private medical information. Hospitals and doctors are
intimidated by HIPAA, and their practices under it have been
exceptionally conservative. Thus, his reassurance goes a bit too far by
creating the impression that HIPAA is easily circumvented.
Jan’s experience of being denied access to
critical health information about her spouse is far more typical than
HHS would have you believe. You do not want to be put into the position
of being denied information about your ailing family member at a
critical moment. Even the delay of hunting down a supervisor, convincing
that person of your need and getting that person to communicate with
staff would be, at the least, frightening and inconvenient and, at the
worst, a delay that could harm your family member.
Jan’s husband was conscious and somewhat
capable of communication. Mr. Wilkinson implies that her husband should
have clearly identified Jan to the hospital and authorized them to share
information with her. But Jan’s letter to Heloise said her husband had "horrible
pains" and "was too ill to even go to the desk and find out the
name of the hospital". He was in the emergency room for a reason. He
needed and wanted his wife, and the HIPAA restrictions did in fact get
in her way.
Though Mr. Wilkinson says there are no
special forms and permission need not be in writing, he is again being
too optimistic. My advice is that everyone (and here I am addressing
Texas residents) have a written Medical Power of Attorney which
identifies an agent with authority to make medical decisions for the
patient.
The Medical Power of Attorney is a written
document that was authorized by the Texas legislature several years
before the federal government issued the HIPAA rules. It should be
modified to address HIPAA explicitly by stating that the agent is fully
authorized to access all private health information about the patient,
and by identifying others (like adult children) to whom you grant
access. Talk to your lawyer and be sure you have the paperwork necessary
to avoid the situation which Jan and her husband faced.