| Dear Mr. Premack: My 66-year-old
mother is in early Alzheimer's and still maintains a job. Her only
noticeable symptom at work is that she is easily irritated. At home she
is in denial and refuses any med she feels is associated with her
diagnosis. My dad, who has her medical power of attorney, requested an
increase in the drug prescribed for her irritable manner at work. The
doctor refused to do this without mom's consent, but she will never
consent to medications when they ask her. This creates a painful circle
for us and makes dad's job as caretaker much worse. What good is the
medical power of attorney if dad cannot use it to obtain what mom needs
to keep her functioning? GFD It is very difficult to balance the needs
of the family and caretaker, the needs of the patient, and the rights we
all take for granted. As caretaker, your father feels responsible for
your mother’s continued well-being. As patient, your mother needs some
supervision but expects to be treated like an adult. It is a nuanced
situation, but is manageable when you understand the law.
According to the Alzheimer’s Disease Research Center, Alzheimer’s is
difficult to diagnose conclusively. The doctor is putting a name to a
series of behavioral symptoms that may be very pronounced in some
patients and very mild in others. There are specific types of dementia
and memory loss that can be similar to Alzheimer’s without the actual
brain damage that is the primary physical feature of Alzheimer’s
disease.
Your mother is still employed so she must perform her job adequately,
except for her spells of irritation. That is a pretty high level of
function. Do you allow her to drive to work? If yes, you must have a
high regard for her ability to make decisions since driving is a very
dangerous activity for anyone, especially for someone with a cognitive
impairment.
She retains legal capacity to make her own medical decisions until
her physician determines that she is no longer capable of understanding
the risks and benefits of a proposed treatment. The Medical Power of
Attorney she signed was not an abrogation of her right to make her own
decisions. In its very first paragraph, it says "This medical power of
attorney takes effect if I become unable to make my own health care
decisions and this fact is certified in writing by my physician".
If her doctor is still seeking her consent when your father makes a
request, the doctor must feel that your mother is still capable of
making her own health care decisions. If that is the doctor’s opinion,
then she retains the legal right to consent or to withhold consent to
any proposed medical treatment (even if the refusal may be harmful to
her).
Her doctor may change that opinion as time passes and her symptoms
worsen. That is when the Medical Power of Attorney becomes invaluable,
as it authorizes your father as agent to make those decisions for her.
Your father cannot take over until the doctor certifies that your mother
is unable to make her own decisions. Perhaps it is time for him to meet
with her doctor so they better understand each other’s positions.
In the meantime, your father can also be honing his caretaker skills.
He can visit the Alzheimer’s Disease Education & Referral Center
website, and can talk to the local Alzheimer’s Association to find a
support group where he can share his feelings and concerns. |